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Nephew by marriage has Lyme disease...

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Nephew by marriage has Lyme disease...

Postby wallsal55 » Fri Sep 14, 2018 11:24 am

He & my niece are jumping through the medical community hoops--now seeking help from Chicago specialist & more test results coming from a CA lab. He has vertigo & passed out twice. Been in ER twice this past week. Any NEW news on living with or getting rid of Lyme Disease?

[Hard to watch as they have 3 kids eleven down to preschool & my niece is trying to work (computer at home) and skippimg sleep.]
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Re: Nephew by marriage has Lyme disease...

Postby Lightening Bug » Fri Sep 14, 2018 11:35 am

Lymes disease is more difficult to treat than some other illnesses. I suspect the MDs have already had tests done to determine if there are other bugs too. From what I've read, and also heard from friends, sometimes curing Lymes only occurs after getting rid of other bugs that often accompany Lymes.

I read about what appears to be a cure for it but believe the research is still in the test stages.

I hope he receives the best and most effective care and will be able to fully recover. It can be, as you have described, a very debilitating disease.

Take care. :D
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Re: Nephew by marriage has Lyme disease...

Postby Lightening Bug » Fri Sep 14, 2018 12:17 pm

Found an article that may be helpful. Again depending on what tests have been done.

Quote from the article below - it appears it's important to identify the Strain of Lyme in order to properly treat it - from the article below -

According to a report by Feng in 2014, thanks to FDA approved drug libraries, with the information obtained from rapid testing, researchers can quickly screen thousands of drugs to determine which agents have the strongest ability to kill the Borreliaspirochetes. Taken into account with the NIAID conclusions that an effective vaccine targeting strain-specific components of Lyme disease would need to be specifically designed to protect against multiple strains, and in the very near future we might be able to diagnose and treat various forms of Lyme disease within days. And at much lower costs than the current burden of disease and treatment plans require.

These are new and exciting reasons for the science community to be optimistic. “Through rapid genetic sequencing, scientists can identify many different strains of Borrelia burgdorferias well as new tick-borne microbial infections, such as Borrelia miyamotoi, Borrelia mayonii, and the Heartland virus,” says Dr. Fallon. Heand his co-author Jennifer Sotsky, M.D. (a fellow physician at Columbia University Medical Center)wrote a book called Conquering Lyme Disease: Science Bridges the Great Divide, explaining why there is much cause for hopefulness in their scientific circles. Although the disease is not well known in parts of the U.S., for those areas most affected, recent breakthroughs could mean significant differences in tens of thousands of lives and billions of dollars saved.


Have the strains in blue been checked for?

https://www.forbes.com/sites/nicolefisher/2018/06/21/tick-tech-biotech-tools-give-new-hope-for-those-with-lyme-disease/#4745be791de4

Don't know if this article helps.

Take care. :D
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Re: Nephew by marriage has Lyme disease...

Postby Coffee » Fri Sep 14, 2018 2:23 pm

Just a suggestion: there might be a Lyme's disease support group in your area, Sal. There is a support group for that disease in my area; there's an announcement about it in the local paper quite often.
One lady has been wheelchair-bound from Lyme's disease for years here.
I hope your nephew can fully recover, too.
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Re: Nephew by marriage has Lyme disease...

Postby wallsal55 » Fri Sep 14, 2018 2:53 pm

Yes. they are not sure which antibiotics to try or what superbugs or infections go with it. So that's where they are at now.
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Re: Nephew by marriage has Lyme disease...

Postby wallsal55 » Fri Sep 14, 2018 3:26 pm

He just posted he has two lyme strains. And a sensitivity to mold/fungi in his blood.
This is so much more than I ever heard about it ! At least they have more refined lab results. Hopefully, they know how to treat it.
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Re: Nephew by marriage has Lyme disease...

Postby mowmud » Fri Sep 14, 2018 7:47 pm

I haven't been bit by a tick in over a year. I still try and figure out why I had a seizure. Ticks have long term effects. The places I have been bitten are healed, but you can still see where they bit me. They heal slow. I wish your nephew strength. Seizures suck.
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